Description
Book SynopsisWritten by leading mental health professionals, this warm and accessibleparentingbookfor children with chronic illnessesoffers clear, practicalguidancefor all aspects of the journey. Recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn''s Colitis Foundation, and other expertnational and regional sources.
For all its joys, parenting is a complex job, and when your child has a chronic illness, the stress can feel overwhelming. When your child is diagnosed, you begin a parenting journey filled with strong emotions, difficult choices, confusing words, and interactions with numerous professionals and specialists.
You’re focused on ensuring your child gets the best possible treatments for their symptoms, so it’s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best
Trade Review
Psychologist Sileo and family therapist Potter prove to be profoundly sympathetic guides in this take on the 'unexpected journey' of having a child who is diagnosed with a chronic or terminal illness… Sileo and Potter offer realistic comfort and directly applicable skill-building in equal measure. The wise advice and helpful tips will leave parents feeling well-equipped to face steep challenges.
* Publishers Weekly *
When Your Child Has A Chronic Medical Illness helps to show the need for caregivers to treat themselves humanely and with compassion. It is a godsend for anyone seeking guidance and tools for assistance in navigating the many challenges that arise within themselves, their caregiving support circle, the medical and social program arenas. It shines a light on difficult and confusing subjects with real tools for a reader to take from the book with comprehensive charts and easy to understand advice to help with the many issues that may be encountered. Dr. Sileo and Carol show us not only why, but also how, to practice self-empathy to help with the journey of caring for a child with a chronic illness. Finally, this book can help caregivers reaffirm their purpose with appropriate self-care and experience the beauty and transformation this pilgrimage will provide. * Dream Street Foundation *
Table of Contents
Acknowledgments
The Unexpected Journey Begins
Chapter 1. Navigating Your Feelings
Chapter 2. Staying Healthy on the Journey
Chapter 3. Getting What You Need on the Road to the New Normal
Chapter 4. Communicating With Your Child: It's a Two-Way Street
Chapter 5. Your Co-Pilots: Other Parents and Parent Figures in Your Child’s Life
Chapter 6. Getting Everyone on Board: Siblings and Other Family Members
Chapter 7. Mechanics of Working With the Medical Team
Chapter 8: Mechanics of Working With the School Team
Chapter 9: The Cone Zone: Setting Healthy Boundaries
Chapter 10. When Your Journey Includes Hospital Stays
Chapter 11. The Journey Through Death and Beyond
Chapter 12. Concluding Thoughts: Building Resilience on the Journey
Resources for Your Journey
Notes
About the Authors
