Description

Book Synopsis
This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.

Table of Contents
List of Figures Notes on Contributors Introduction: Voices of Illness  Peter Bray Part 1: The Story, Identity and the Voice 1 Narrative Medicine and Storytelling: An Alternative Method for Healing  Victorria Simpson-Gervin Part 2: Group Voices and Group Identity 2 AIDS Awakens Ancient Stories  Deborah Freedman 3 Life Story Sharing: A Therapeutic Intervention in Palliative Care  Miranda Quinney, Alison Ward and Jane Youell 4 The Collective Production of a Shared Narrative Surrounding Sexual Violence Trauma  Elena Sharratt Part 3: Irreconcilable Voices: Liminal, Empowered, and Authentic 5 Stories of Journeys Home: Reuniting Ancestors, Images, and the Underworld  Alexandra Fidyk 6 Making and Sharing Meaning out of Terminal Illness  Pam Morrison and Annie McGregor 7 Toni Cade Bambara’s The Salt Eaters: Hearing the Silent Voice of Pain  Yomna Saber 8 Voices of Depression: An Analysis of a Collective Narrative  Hans T. Sternudd Part 4: Ethical Stories: Voices in Research 9 A Shared Story of Professional Practice: Therapists Make Meaning of Spirituality  Peter Bray 10 Dementia Fiction: Giving Voice to an Experience beyond Language  Naomi Krüger 11 Developing a Relational Narrative about Diabetes: Towards a Polyphonic Story  Mirjam Stuij, Agnes Elling, Anja Tramper and Tineke Abma Part 5: Challenges to the Institutional Illness Discourse 12 Self-Reflexivity in Oral History Research: The Role of Positionality and Emotions  Verusca Calabria 13 The Voiceless and the Vocal: Infection Literature and The Sign of the Four  Justyna Jajszczok Name Index Subject Index

Voices of Illness: Negotiating Meaning and Identity

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      Publisher: Brill
      Publication Date: 28/03/2019
      ISBN13: 9789004390782, 978-9004390782
      ISBN10:

      Description

      Book Synopsis
      This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.

      Table of Contents
      List of Figures Notes on Contributors Introduction: Voices of Illness  Peter Bray Part 1: The Story, Identity and the Voice 1 Narrative Medicine and Storytelling: An Alternative Method for Healing  Victorria Simpson-Gervin Part 2: Group Voices and Group Identity 2 AIDS Awakens Ancient Stories  Deborah Freedman 3 Life Story Sharing: A Therapeutic Intervention in Palliative Care  Miranda Quinney, Alison Ward and Jane Youell 4 The Collective Production of a Shared Narrative Surrounding Sexual Violence Trauma  Elena Sharratt Part 3: Irreconcilable Voices: Liminal, Empowered, and Authentic 5 Stories of Journeys Home: Reuniting Ancestors, Images, and the Underworld  Alexandra Fidyk 6 Making and Sharing Meaning out of Terminal Illness  Pam Morrison and Annie McGregor 7 Toni Cade Bambara’s The Salt Eaters: Hearing the Silent Voice of Pain  Yomna Saber 8 Voices of Depression: An Analysis of a Collective Narrative  Hans T. Sternudd Part 4: Ethical Stories: Voices in Research 9 A Shared Story of Professional Practice: Therapists Make Meaning of Spirituality  Peter Bray 10 Dementia Fiction: Giving Voice to an Experience beyond Language  Naomi Krüger 11 Developing a Relational Narrative about Diabetes: Towards a Polyphonic Story  Mirjam Stuij, Agnes Elling, Anja Tramper and Tineke Abma Part 5: Challenges to the Institutional Illness Discourse 12 Self-Reflexivity in Oral History Research: The Role of Positionality and Emotions  Verusca Calabria 13 The Voiceless and the Vocal: Infection Literature and The Sign of the Four  Justyna Jajszczok Name Index Subject Index

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