Description
Book SynopsisGenetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then – the authors of this volume claim – the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti
Trade Review"Well worth reading!" – in: Making Science Public (University of Nottingham Blogs)
Table of ContentsIntroduction: Christoph Rehmann-Sutter, Malte Dreyer and Jeanette Erdmann 1. Christoph Rehmann-Sutter and Malte Dreyer: The Idea of ‘Genes’ and Their ‘Transparency’ 2. Benedikt Reiz, Jeanette Erdmann and Christoph Rehmann-Sutter: Making Genomes Visible 3. Angeliki Kerasiou, Cathy Herbrand and Malte Dreyer: Who is the Subject of Genetic Responsibility? 4. Teresa Finlay, Shannon Gibson, Lene Koch and Sara Toccheti: Personal Genomics: Transparent to Whom? 5. Kirsten Brukamp, Gabrielle M. Christenhusz and Caroline Fündling: Genetic Transparency versus Genetic Privacy – The Complex Ethics of Genetic Testing in Humans 6. Andrei Famenka, Shannon Gibson and Fruzsina Molnár-Gábor: Understanding the Complexity of Regulation in an Evolving Health Technology Landscape 7. Gabrielle M. Christenhusz, Lorraine Cowley, Tim Ohnhäuser and Vasilija Rolfes: Genetic Transparency – Transparency of Communication About the Authors Index
