Description
Book SynopsisWhen ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being "too sensitive" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she’s finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife’s mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?
Trade Review"This is not a tidy story, but in its messiness, Graybeal's book reflects the complexity of life with EDS. Those coming to terms with their own chronic illness or that of a loved one will find this unflinching memoir illuminating." —Rebecca Hopman,
Booklist
"In this compelling memoir, debut author and cartoonist Graybeal writes about her life living with chronic pain and her childhood diagnosis of the rare genetic connective tissue disorder called Ehlers-Danlos syndrome." —Bridgette Whitt, Library Journal
