Description
Book SynopsisAs end of life care is extended to more and more people it is increasingly important that people with progressive neurological disease are recognised as having particular issues as their disease progresses. This group of people with advancing motor neurone disease, multiple sclerosis, Parkinson''s disease, multiple systems atrophy, progressive supranuclear palsy, Huntington''s disease and other progressive neurological disease face increasing problems - with physical symptoms and psychosocial and spiritual issues for both themselves and their families and carers. This book encourages health and social care professionals to become closely involved in the care of these people and their families, so that advance care plans can be started and quality of life maintained. This book addresses the principles and practice of developing end of life care strategies for neurological disease, written with a clinical, multidisciplinary focus and illustrated with detailed case studies.
Trade ReviewFrom the reviews:
“This book grew out of the report on a UK meeting of health and social care professionals, together with representative patient organisations, convened to discuss the needs of people with progressive neurological disease. … This book represents a lot of work and consideration, cataloguing the needs of these patients and their carers and working out how those needs can be best met.” (Roger Woodruff, Newsletter IAHPC book reviews, hospicecare.com, Vol. 14 (11), November, 2013)
Table of Contents1. End of Life Care.- 2. End of life care in neurological disease.- 3. Communication.- 4. Physical Symptoms – Assessment Management.- 5. Holistic Care – Psychosocial and Spiritual Aspects.- 6. Coordination of Care.- 7. Advance Care Planning.- 8. Care at the end of life.- 9. Carers.- 10. Future Developments in Care.- 11. International Aspects of Care: Australia.- 12. International Aspects of Care: Europe.- 13. International Aspects of Care: Africa.- 14. Conclusion.
