Description
Book SynopsisOver 350,000 families in United States alone are affected by Down syndrome. This book provides a comprehensive treatment of the issues of self determination, education, and advocacy, as well as the research developments. It addresses the needs of family members, caregivers, and professionals alike.
Trade Review"This volume is a comprehensive collection of articles representing a wide range of disciplines…it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." (
American Journal of Medical Genetics, August 15, 2004)
“...a comprehensive compilation of the myriad issues facing individuals with Down syndrome and their families across the lifespan...this book, compared to other tomes of highlights from various conferences, seems to contain more bang for the buck as the issues it covers are extremely pertinent and could stand alone apart from the conferences...this book will stay on my shelf.” (Journal of Genetic Counseling, Vol. 13, No. 1, February 2004)
"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder..." (family2000.org.uk, 9 September 2002)
"...puts foward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health)
"...puts forward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health, Vol.15, No.1, 2003)
"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)
"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)
"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)
"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)
"...a useful reference tool for families and service providers." (Human Genetics, No.113, 2003)
Table of ContentsSelf-Determination.
Self-Advocacy.
Advocacy.
Role of the Family.
Health and Clinical Care.
Research.
Psycho-Social Issues.
Education/Inclusion.
Communication, Math and Language Skills.
Turning the Vision into Reality.
