Description
Book SynopsisCystic Fibrosis: The Ultimate Teen Guide leaves no aspect of this disease untold. Based on a series of interviews with young people with CF and their family members, the day-to-day dealings of life as a cystic fibrosis patient are described. Some of the topics covered include a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing CF; coverage of the arduous daily therapies involved in maintaining the life of a person with CF; and the challenges of dealing with CF-related diabetes. These teens'' stories reflect how they live their lives to the fullest, how they are not bitter about their situations, and how they look forward to new medications, more-effective therapies, andone day soona cure. Also included are stories told by people, now in their 30s and 40s, having CF who are still alive and coping well with the disease, demonstrating that progress is being made and that they can hope to live b
Trade ReviewA solid introduction to the disease...A plethora of stories accompanies each chapter....Young adults with the disease will feel a part of a worldwide community after reading this book. There is optimism as well as sadness here, but most of all there is the resonance of CF sufferers' voices telling others, 'You are not alone.' * School Library Journal, 10/1/2006 *
...this great resource gives extensive medical and technical information as well as profound insight in the disease's human impact....this entry offers excellent research information for patients, families, and students. Its additional pages, however, provide even greater depth. Gripping personal accounts will pull in readers, teenage and adult, who are not familiar with the disease. * VOYA *
Table of ContentsPart 1 Medical Disclaimer Part 2 Acknowledgments Part 3 Introduction Chapter 4 1. Cystic Fibrosis: The Facts Chapter 5 2. A Genetic Disorder Chapter 6 3. A Diagnosis Chapter 7 4. A Daily Challenge Chapter 8 5. Good Days and Bad Days Chapter 9 6. Living and Laughing Chapter 10 7. Other Complications Chapter 11 8. A Second Chance: The Lung Transplant Chapter 12 9. In the End Chapter 13 10. Just over the Horizon Part 14 Afterword Part 15 The Fabulous List of CF Resources Part 16 Glossary Part 17 Glossary of CF Meds Part 18 Bibliography Part 19 Index Part 20 About the Author
