Description
Starred Review from Publishers Weekly. "It''s a revealing visualization of a rare, ''depersonalizing'' condition and how Sweeney finds ''drops of disabled joy whenever I can.'' Sweeney''s subtle and elegant art reflects the nuance of her moment-to-moment struggle."
An evocative and heartfelt graphic memoir about the challenges of living with a progressive disability.
When Maria Sweeney was young, she kept count of her broken bones. As she grew older, she stopped. Living with Bruck syndrome, a rare progressive condition that gives her very brittle bones and joint abnormalities, meant that those numbers climbed and climbed.
Today, she struggles every day, living in an often-inaccessible world. As an ambulatory wheelchair user, ordinary actions like entering a building, sitting at a café, or holding a cup of tea can be drastically different for her than for others.
With lush illustrations, Maria tells the story of her lif
