Description
Book SynopsisDrawing on memoir, history, and theory, Eli Clare complicates the understanding of cure, seeing it as an ideology that serves contradictory purposesfrom saving lives to social controlwhile critiquing cure rhetoric and the drive to cure disabled people through an insistence of the value of disability.
Trade Review"Vermont has many national treasures living quietly among us, and one of them is Addison County resident Eli Clare. His latest book,
Brilliant Imperfection: Grappling with Cure, is revelatory, a clarion call for changing the medicalized disability narrative of defective brokenness." -- John Killacky * Vermont Public Radio *
"
Brilliant Imperfection is a clarion call, for changing the medicalized disability narrative, that of 'defective brokenness,' that often prevails in U.S. healthcare.... [It] provides empowering answers and guidance-contributing significantly to the evolving discourse on gender, queer, and disability studies." -- John R. Killacky * Gay & Lesbian Review *
"
Brilliant Imperfection is an honest, moving, and deeply thoughtful engagement with some of the most difficult and significant questions in disability, queer, and cultural studies. . . .
Brilliant Imperfection is sure to become required reading for scholars of disability and queer studies, revealing the multiple, often contradictory meanings and consequences of cure and the importance of work for social justice." -- Laurel Daen * H-Disability, H-Net Reviews *
"
Brilliant Imperfection is powerfully intersectional in its approach to body-mind difference: disability, as an identity, process, and means of interacting with the world, cannot be disentangled from other facets of identity like race, sexuality, class, and gender." -- Travis Lau * Wordgathering *
"This book will quickly become a classic, cited for Clare's careful analogies that examine cure through the notion of ecosystem restoration; his harsh critique of 'case files' and the work that scholars and artists do with them; and his deeply-nuanced exploration of the shame, grief, loss, and yearning in relation to bodymind difference.
Brilliant Imperfection is beautifully written, with the insight and poetic clarity that readers have come to expect from Clare." -- Ryan Cartwright * Disability Studies Quarterly *
"Clare’s
Brilliant Imperfection provides a well-researched, thoroughly thought-out project that grapples with multiple relevant discourses surrounding disability and PwDs. In highlighting historical, personal, and anecdotal evidence, Clare’s text is an articulate, poignant narrative – a mosaic of stories, histories and experiences – that invites much debate and analysis." -- Heather Lacey * Journal of Gender Studies *
"
Brilliant Imperfection is a provocation—one that spotlights how crucial disability studies continues to be, particularly as scholars, activists, and artists make room for more nuanced conversations about rehabilitation, cure, and diagnosis." -- Julie Passanante Elman * Feminist Formations *
"As lawmakers present some lives as worth less than others, we need voices like Clare’s: the voices of those who see worth in the most devalued lives but who also recognize that a simple critique of medical technology is inadequate when so many people around the world desperately need access to that technology.
Brilliant Imperfection is therefore timely and necessary for our current political moment—and it will prove a critical resource as we seek to create a better world." -- Julie Avril Minich * QED *
“Accessible and poetic.
Brilliant Imperfection will be valuable to students in introductory medical anthropology courses as well as anthropology courses on the body and human–nature interactions.” -- Michele Friedner * Medical Anthropology Quarterly *
"[Brilliant Imperfection] wasn’t a how-to on overcoming grief and injury. It was permission to be who the accident made me: a disabled dyke. It was a permission to rage against the abelist and lesbiphobic shame I’d internalized. Clare was the only person who told me my worth was not dependent on my ability to get better or to disappear my pain. I cried as I read and re-read."
-- Sara Youngblood Gregory * Vice *
Table of ContentsAcknowledgments xi
Introduction: Writing a Mosaic xv
A Note on Reading This Book: Thinking about Trigger Warnings xix
Brilliant Imperfection: White Pines 1
1. Ideology of Cure 7
Brilliant Imperfection: Twitches and Tremors 19
2. Violence of Cure 21
Brilliant Imperfection: Maples 33
3. In Tandem with Cure 37
Brlliant Imperfection: Stone 49
4. Nuances of Cure 51
Brilliant Imperfection: Shells 65
5. Structure of Cure 67
Brilliant Imperfection: Hermit Crabs 81
6. How Cure Works 83
Brilliant Imperfection: Rolling 99
7. At the Center of Cure 101
Brilliant Imperfection: Myrtle 125
8. Moving Through Cure 127
Brilliant Imperfection: Drag Queen 147
9. Impacts fo Cure 149
Brilliant Imperfection: Survival Notes 169
10. Promise of Cure 171
Brilliant Imperfection: Cycling 189
Notes 191
Bibliography 201
Index 209
