Description

Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.
Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

Beyond The Pale: Folklore, Family and the Mystery of Our Hidden Genes

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£14.99

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Paperback / softback by Emily Urquhart

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Short Description:

Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl... Read more

    Publisher: Jacaranda Books Art Music Ltd
    Publication Date: 11/04/2016
    ISBN13: 9781909762336, 978-1909762336
    ISBN10: 1909762334

    Number of Pages: 292

    Non Fiction , Biography

    Description

    Emily's story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness.
    Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

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