Description
Book Synopsis It''s unusual to access a child''s mind during the magic years of childhood. It''s rarer when the child is facing her death. Liza, an ardent child with a deep love of cows and the color purple was diagnosed with leukemia at age four and died two years later in 1996. Liza was an unusually expressive child and her parents, both child psychiatrists, were uniquely oriented to appreciate the richness of a child''s mind. Through writing this book, Liza''s father strove to reveal the inner world of a child''s mind--and a parent''s mind--as few other books can.
At its center, this is the story of a child''s psyche growing and striving to understand all she could of her experience, and of a small family coping with life''s biggest challenges. It is a story of love''s power to help a family cope and endure despite loss, and to grow, through darkness, back toward a full embrace of life. Through the process, the family emerges transformed, awed by the capacities of this child.
Table of ContentsIntroduction: The Wonderful World of Color 1
Part I. All the Way to the Deep End 5
1 Bone Marrow Biopsy 6
2 Day Zero 11
3 Induction 19
4 A Bumpy Road 28
5 Complications 35
6 Living with What Do You Call It 61
Part II. Transplantation: From Hither to Yon 85
7 Limbo 86
8 Second Year, Second Medical Center 94
9 Final Preparations 102
10 Transplant 115
11 Home Again, Again 132
12 Fog 140
13 GVHD and PUVA 148
14 New Troubles: Diabetes and Pain 164
Part III. Heart to Heart 175
15 Questions 176
16 Did You Get That? 186
17 Supports 193
18 Alert Again 199
19 Speaking of Death 211
20 The Happy Sad Birthday 237
21 The Reader 245
22 Molly's Birthday 251
23 Time 255
Epilogue: Through Loss, Deeper Hues 263
Acknowledgments 272
Index 275
