{"product_id":"uncertain-futures-9781118909713","title":"Uncertain Futures","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003e\u003cp\u003eThis book examines children and young people's attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death.\u003c\/p\u003e \u003cul\u003e \u003cli\u003eClearly and compellingly written, Clementerelieson a new multi-layered methodto identify six cancer communication strategies\u003c\/li\u003e \u003cli\u003eIllustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabitor that they want to inhabit\u003c\/li\u003e \u003cli\u003eProvides ethnographic case studies of childhood cancer patients in Spain, using children''s own words\u003c\/li\u003e \u003cli\u003eExamines the challenges of how to talk to and how to encourage patients'' involvement in reatment discussions\u003c\/li\u003e \u003cli\u003eIn his critique of the telling versus not telling debates, Clemente argues that communication should be adjusted to the children's own needs, and that children''s\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTrade Review\u003c\/b\u003e\u003cbr\u003e\"...opens up broader margins of reflection about how medical diagnoses, and in general medical communication, are delivered and negotiated and provides the reader with extensive references with which the theoretical discussion is constantly confronted and challenged...Clemente is surely paving the way toward a more fertile and effective collaboration between medical and linguistic anthropology...\" - \u003ci\u003eLetizia Bonanno, AAA Book Forum, 2016\u003c\/i\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003eSeries Preface ix \u003cp\u003eAcknowledgments xii\u003c\/p\u003e \u003cp\u003ePreface xiv\u003c\/p\u003e \u003cp\u003e\u003cb\u003e1. Children: Contributions to Communication and Illness 1\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eAlternatives to Speaking 5\u003c\/p\u003e \u003cp\u003eDisclosure as a Dynamic and Heterogeneous Process 7\u003c\/p\u003e \u003cp\u003eDisclosure to Children with Cancer 10\u003c\/p\u003e \u003cp\u003eProblematizing Participation 13\u003c\/p\u003e \u003cp\u003eUncertainty and the Practice of Optimism 21\u003c\/p\u003e \u003cp\u003eMultiple Uncertainties 21\u003c\/p\u003e \u003cp\u003eHierarchically Organized Uncertainties 23\u003c\/p\u003e \u003cp\u003eVariable Uncertainties 23\u003c\/p\u003e \u003cp\u003ePracticing Hope and Optimism 25\u003c\/p\u003e \u003cp\u003eEthnography and Conversation Analysis 26\u003c\/p\u003e \u003cp\u003ePlan of the Book 31\u003c\/p\u003e \u003cp\u003e\u003cb\u003e2. A Linguistic Anthropologist in a Pediatric Cancer Unit 33\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eCulture and Disclosure Practices in Catalonia 34\u003c\/p\u003e \u003cp\u003eFieldwork with Children 38\u003c\/p\u003e \u003cp\u003eContexts of Children’s Questions 42\u003c\/p\u003e \u003cp\u003eInvestigating Avoidance 44\u003c\/p\u003e \u003cp\u003eMultiple Ways of Talking about Cancer 47\u003c\/p\u003e \u003cp\u003e\u003cb\u003e3. Living and Dealing with Cancer 49\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eFocusing on Treatment 51\u003c\/p\u003e \u003cp\u003eGuessing 55\u003c\/p\u003e \u003cp\u003eEstar baixet (Having Low Blood Cell Counts) 56\u003c\/p\u003e \u003cp\u003eLes llagues (Mouth Sores) 57\u003c\/p\u003e \u003cp\u003eLa febre (Fever and Infections) 58\u003c\/p\u003e \u003cp\u003eBeing Together 60\u003c\/p\u003e \u003cp\u003eAcompanyar (Being at the Patient’s Side) 61\u003c\/p\u003e \u003cp\u003eMenjar (Eating) 63\u003c\/p\u003e \u003cp\u003eFer una visita (Visiting) 64\u003c\/p\u003e \u003cp\u003eTalking Privately 67\u003c\/p\u003e \u003cp\u003eUncertainties of Treatment 71\u003c\/p\u003e \u003cp\u003e\u003cb\u003e4. Co]constructing Uncertainty 74\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eQuestions and Answers 76\u003c\/p\u003e \u003cp\u003eUncertainty and the Topic of Questions 79\u003c\/p\u003e \u003cp\u003eContingent Answers 80\u003c\/p\u003e \u003cp\u003eContingent Questions 86\u003c\/p\u003e \u003cp\u003eUncertainty and the Action of Questions 88\u003c\/p\u003e \u003cp\u003eAnswers that Lead to Subsequent Actions 90\u003c\/p\u003e \u003cp\u003eAvoiding Answers and Avoiding Silence 93\u003c\/p\u003e \u003cp\u003eStepping into the Uncertain Future One Turn at a Time 100\u003c\/p\u003e \u003cp\u003e\u003cb\u003e5. Engaging in Communication at Catalonia Hospital 102\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eLearning the Diagnosis 103\u003c\/p\u003e \u003cp\u003eL’entrevista (The Treatment Interview) 109\u003c\/p\u003e \u003cp\u003e“And When Will I Be Completely Cured?” 111\u003c\/p\u003e \u003cp\u003eSix Communication Strategies 127\u003c\/p\u003e \u003cp\u003e\u003cb\u003e6. Patient Pressure and Medical Authority 129\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eEveryday Life in Treatment 130\u003c\/p\u003e \u003cp\u003e“How Many Chemos Do I Have Left?” 133\u003c\/p\u003e \u003cp\u003eSeeking Answers Without Challenging Medical Authority 151\u003c\/p\u003e \u003cp\u003e\u003cb\u003e7. The Limits of Optimism at the End of Treatment 153\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eRemission 154\u003c\/p\u003e \u003cp\u003eRelapse 159\u003c\/p\u003e \u003cp\u003eNegotiating Death 161\u003c\/p\u003e \u003cp\u003e“Is the Day of the Autotransplant Going to Be Delayed?” 168\u003c\/p\u003e \u003cp\u003eOptimistic Collusion 178\u003c\/p\u003e \u003cp\u003e\u003cb\u003e8. Conclusion 180\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003eAppendix A: Profiles of Patients 189\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eChildren (ages 3-6) 189\u003c\/p\u003e \u003cp\u003eYoung people (ages 11-18) 190\u003c\/p\u003e \u003cp\u003e\u003cb\u003eAppendix B: Transcription Conventions 193\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eReferences 197\u003c\/p\u003e \u003cp\u003eIndex 214\u003c\/p\u003e\n\u003c\/li\u003e\n\u003c\/ul\u003e","brand":"John Wiley and Sons Ltd","offers":[{"title":"Default Title","offer_id":49406944739671,"sku":"9781118909713","price":78.26,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0817\/1739\/5799\/files\/9781118909713.jpg?v=1730497644","url":"https:\/\/bookcurl.com\/products\/uncertain-futures-9781118909713","provider":"Book Curl","version":"1.0","type":"link"}