{"product_id":"the-social-life-of-rare-disorders-9789819620074","title":"The Social Life of Rare Disorders","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003e\u003cp\u003eIntroduction.- Part I Birth of the Rare Diseases.- Wilson's Disease: Between Craftsmanlike and Industrial Medicine.- The Invention of Rare Diseases: Responding to the Problem of Orphan Drugs.- Part II What Does It Mean to Experience a Rare Disease?.- Experiencing Isolation.- Association as a Way Out of Isolation?.- Part III Small Groups, Big Challenges.- Who Runs the Associations? Beyond the PatientDoctor Divide.- Building a Therapeutic Toolbox.- A Fragile Coalition of Disparate Associations.- Conclusion.\u003c\/p\u003e","brand":"Palgrave Macmillan","offers":[{"title":"Default Title","offer_id":53212870607191,"sku":"9789819620074","price":104.49,"currency_code":"GBP","in_stock":false}],"url":"https:\/\/bookcurl.com\/products\/the-social-life-of-rare-disorders-9789819620074","provider":"Book Curl","version":"1.0","type":"link"}