{"product_id":"pioneering-ethics-in-a-longitudinal-study-9781447340386","title":"Pioneering Ethics in a Longitudinal Study","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003eAn examination of the early work of the innovative Avon Longitudinal Study of Parents and Children Ethics and Law Committee. It will help anyone involved in other cohort studies to understand how ethical policies evolve.\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTrade Review\u003c\/b\u003e\u003cbr\u003e\"A fascinating account of a pioneering study, which developed ethical procedures in an evolving context with no existing coherent framework.\" Anna Tarrant, University of Lincoln\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003eIntroduction Part One: ALSPAC Ethics and Law Committee: a new concept one\tPreliminaries and pioneers: framing the questions two\tInformal or casual: an unusual style three\tAdvisory to independent: a missed opportunity four\tBureaucratic battles: liaison with the Local Research Ethics Committees Part Two: Policy development: a case of case law five\tConfidentiality and anonymity: a rod for their own backs six\tInformed consent: too much information seven\tChild protection: an observational study? eight\tDisclosure of individual results: foreseen feedback and incidental findings nine\tDisclosure of individual results: participants’ requests ten\tParticipants’ problems: people not policies eleven\tExternal databases: anonymous linkage Part Three: Beyond policy: a broad remit twelve\tRetention of the Cohort: incentives or inducements thirteen\tCommercial collaborations: selling our souls fourteen\tComprehensive oversight: undocumented and unacknowledged fifteen\tInfluence beyond ALSPAC: extension of expertise Conclusions","brand":"Bristol University Press","offers":[{"title":"Default Title","offer_id":49408507576663,"sku":"9781447340386","price":48.59,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0817\/1739\/5799\/files\/9781447340386.jpg?v=1730503157","url":"https:\/\/bookcurl.com\/products\/pioneering-ethics-in-a-longitudinal-study-9781447340386","provider":"Book Curl","version":"1.0","type":"link"}