{"product_id":"negotiating-risk-british-pakistani-experiences-of-genetics-9781845455484","title":"Negotiating Risk: British Pakistani Experiences","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003e\u003cp\u003e \tDrawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a ‘genetic diagnosis’. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated ‘risk’ of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural stereotypes. The book addresses questions about the relationship between genetic risk and clinical practice that will be relevant to health workers and policy makers.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTrade Review\u003c\/b\u003e\u003cbr\u003e\u003cp\u003e \t“…a timely analysis…\u003cem\u003eShaw’s work offers many insights to those working with potentially affected people, healthcare policy makers and planners, and those in the general public who are interested in these issues.\u003c\/em\u003e”\u003cb\u003e  ·  \u003c\/b\u003e\u003cstrong\u003eSocial Anthropology\/Anthropologie sociale\u003c\/strong\u003e\u003c\/p\u003e \u003cp\u003e \t“\u003cem\u003eThis book is a long awaited breath of fresh air to put risky genes and tradition into proper scientific context.\u003c\/em\u003e”\u003cb\u003e  ·  \u003c\/b\u003e\u003cstrong\u003eHuman Biology\u003c\/strong\u003e\u003c\/p\u003e \u003cp\u003e \t“\u003cem\u003eThis is a sensitively written and engaging account of a very difficult topic – both intellectually and emotionally. Shaw’s long-standing research with British Pakistanis in the Oxford area is very evident in her ability to develop strong relationships with informants, based on shared understandings and empathy. Shaw manages to produce a book which is both academically rigorous and highly readable, indeed compelling. This is not only a remarkable achievement in itself; it also means that the volume can – and should – be read not just by anthropologists and other social scientists, but by health professionals and policy makers. It should be compulsory reading for medical students!\u003c\/em\u003e”\u003cb\u003e  ·  \u003c\/b\u003e\u003cstrong\u003eAnthropos\u003c\/strong\u003e\u003c\/p\u003e \u003cp\u003e \t\u003ci\u003e“This is a thoughtful examination of important issues of risk, genetic information and the development of diaspora specific narratives. It is both systematic and engaging, which is not an easy thing to accomplish. Overall I think Shaw has made a remarkable contribution to a topic which is rife with words printed but sadly lacking in innovative approaches.”\u003c\/i\u003e\u003cb\u003e  ·  Stephen Lyon\u003c\/b\u003e, Durham University\u003c\/p\u003e \u003cp\u003e \t\u003ci\u003e“…an excellent piece of work [that] addresses a very important debate at the intersection of clinical genetics, delivery of health services to ethnic minorities and anthropology “\u003c\/i\u003e\u003cb\u003e  ·  Bob Simpson\u003c\/b\u003e, Durham University\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003e\u003cp\u003e \tList of Figures\u003cbr\u003e \tAcknowledgements\u003c\/p\u003e \u003cp\u003e \t\u003cstrong\u003eIntroduction: \u003c\/strong\u003eExploring genetic risk\u003c\/p\u003e \u003cp\u003e \t\u003cb\u003eChapter 1:\u003c\/b\u003e Medical and public perceptions of consanguineous marriage and genetic risk\u003cbr\u003e \t\u003cb\u003eChapter 2:\u003c\/b\u003e Close kin marriages: some anthropological theory and European history\u003cbr\u003e \t\u003cb\u003eChapter 3:\u003c\/b\u003e British Pakistani cousin marriages: balancing marital risks\u003cbr\u003e \t\u003cb\u003eChapter 4:\u003c\/b\u003e Medical surveillance and diagnostic uncertainty\u003cbr\u003e \t\u003cb\u003eChapter 5:\u003c\/b\u003e Responding to reproductive risk\u003cbr\u003e \t\u003cb\u003eChapter 6:\u003c\/b\u003e Foretelling and managing infant death\u003cbr\u003e \t\u003cb\u003eChapter 7:\u003c\/b\u003e Genetic screening and the extended family\u003cbr\u003e \t\u003cb\u003eChapter 8:\u003c\/b\u003e Genetic risk in context\u003c\/p\u003e \u003cp\u003e \tBibliography\u003cbr\u003e \tIndex\u003c\/p\u003e","brand":"Berghahn Books","offers":[{"title":"Default Title","offer_id":51042980495703,"sku":"9781845455484","price":89.1,"currency_code":"GBP","in_stock":false}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0817\/1739\/5799\/files\/9781845455484.jpg?v=1750956503","url":"https:\/\/bookcurl.com\/products\/negotiating-risk-british-pakistani-experiences-of-genetics-9781845455484","provider":"Book Curl","version":"1.0","type":"link"}