{"product_id":"mad-knowledges-and-user-led-research-9783031075506","title":"Mad Knowledges and User-Led Research","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003e\u003cp\u003eThis book presents a critical examination of the development of user involvement within research, and investigates the issues currently preventing a productive integration of Mad knowledges within research and practice. Drawing on social, linguistic and critical theories, it proposes the conditions needed to address the development of Mad epistemologies.\u003c\/p\u003e  The author’s unique approach deliberately highlights her own positionality and draws on decades of experience as a service recipient, survivor, activist and researcher to illustrate the structural and symbolic barriers faced. Employing concepts including epistemic injustice, individualization, normalization and structural violence, it suggests a radically new way of articulating ‘what’s the matter with us?’ In doing so, the book itself goes some way towards enacting the radical challenge to academic and epistemic hierarchies which, it is argued, will be required to further advance mad knowledges and user-led research. Crucially, it demonstrates how this approach can be both methodologically and conceptually rigorous. \u003cp\u003e\u003c\/p\u003e  \u003cp\u003eThis novel work holds important insights for students and scholars across the humanities and social sciences; particularly those working in the areas of critical psychology, disability studies, Mad studies, feminist studies, critical race theory, and Queer theory.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003e\u003cp\u003ePart I Setting the Scene.\u003c\/p\u003e  \u003cp\u003e1 What Does Madness Articulate?.\u003c\/p\u003e  \u003cp\u003eBackground.\u003c\/p\u003e  When Madness Begins to Speak What Does ‘It’ Say?.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eMobilising as Speaking Back?.\u003c\/p\u003e  \u003cp\u003eNon-uniformity.\u003c\/p\u003e  Who Speaks?.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eThe Underground.\u003c\/p\u003e  \u003cp\u003eThe Field.\u003c\/p\u003e  \u003cp\u003eThe ‘Mainstreams’ of Survivor Voices—Psychiatry.\u003c\/p\u003e  \u003cp\u003eThe Academy and ‘Psy’ Research.\u003c\/p\u003e  \u003cp\u003eSpeaking Back to Austerity.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  References.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003e2 Mental Challenges as Constitutive of Marginalisation?.\u003c\/p\u003e  \u003cp\u003eBackground.\u003c\/p\u003e  \u003cp\u003eCollectives.\u003c\/p\u003e  \u003cp\u003eThe Clinical Encounter.\u003c\/p\u003e  \u003cp\u003eOut of the Hospital.\u003c\/p\u003e  \u003cp\u003eCan Communities be Developed?.\u003c\/p\u003e  Psychiatric Facilities and Policies as Obstacles to Forming Groups.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eSurvivors as a ‘Marginalised Community’.\u003c\/p\u003e  \u003cp\u003eCounter-Narratives from the Mainstream.\u003c\/p\u003e  Activism.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eWhat Is to be Done?.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003ePart II User Involvement in Research—England as a Case Study.\u003c\/p\u003e  \u003cp\u003e3 History of Patient and Public Involvement in England.\u003c\/p\u003e  \u003cp\u003eBackground and Summary.\u003c\/p\u003e  \u003cp\u003eLanguage and Representation.\u003c\/p\u003e  \u003cp\u003eWho Is the Public?.\u003c\/p\u003e  \u003cp\u003eCan I Apply?.\u003c\/p\u003e  What Is ‘Meaningful’ Involvement?.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003ePower.\u003c\/p\u003e  \u003cp\u003eChanges in Structures.\u003c\/p\u003e  \u003cp\u003eResearch by ‘Lay’ People Outside Official Structures.\u003c\/p\u003e  \u003cp\u003eHidden from PPI—Lay Research.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003e4 Research and Practice or What About the Wild?.\u003c\/p\u003e  \u003cp\u003eThe Problems.\u003c\/p\u003e  \u003cp\u003eScope.\u003c\/p\u003e  Impact: The Beginning.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eThe Question of ‘Impact’ in Involvement Activities.\u003c\/p\u003e  \u003cp\u003eWhat Is Meant by the Term ‘Impact’? Two Approaches.\u003c\/p\u003e  Evidence-Based Medicine (EbM).\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eScience and Technology Studies.\u003c\/p\u003e  \u003cp\u003eSurvivor Research and Change.\u003c\/p\u003e  The Fundamental Difference.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eWhere Does Madness Sit in the PPI Terrain?.\u003c\/p\u003e  \u003cp\u003eBack to ‘Impact’.\u003c\/p\u003e  What Happens When PPI Happens?.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eThe Secret of Process.\u003c\/p\u003e  \u003cp\u003eProcess Evaluations.\u003c\/p\u003e  \u003cp\u003eGoing Beyond PPI.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003e5 Working with Others and ‘Coproduction’.\u003c\/p\u003e  Background.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eDoes Everybody Agree?.\u003c\/p\u003e  \u003cp\u003eAddressing the Field.\u003c\/p\u003e  \u003cp\u003eRelevant Themes.\u003c\/p\u003e  \u003cp\u003eSettings, Partners and Mental Health.\u003c\/p\u003e  \u003cp\u003eHistorical Aspects of Coproduction.\u003c\/p\u003e  \u003cp\u003eExamples of Coproduction?.\u003c\/p\u003e  \u003cp\u003eThe Costs of Coproduction?.\u003c\/p\u003e  \u003cp\u003ePartners and Allies.\u003c\/p\u003e  \u003cp\u003ePower Again.\u003c\/p\u003e  Conclusion.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003ePart III Foundational Categories and User-Led Research.\u003c\/p\u003e  \u003cp\u003e6 Experience as a Foundation of Knowledge-Making: What’s in a Name?.\u003c\/p\u003e  \u003cp\u003eBackground.\u003c\/p\u003e  \u003cp\u003eProcess.\u003c\/p\u003e  \u003cp\u003eNaming.\u003c\/p\u003e  Terminology, Identity and ‘Who Counts’.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eLived Experience.\u003c\/p\u003e  \u003cp\u003eDisability Under Erasure.\u003c\/p\u003e  \u003cp\u003eFrom Soft to Strong and Back Again.\u003c\/p\u003e  \u003cp\u003eSurvivordom.\u003c\/p\u003e  \u003cp\u003eA Third Way?.\u003c\/p\u003e  \u003cp\u003eImplications of Names.\u003c\/p\u003e  \u003cp\u003eExperts and How Should We Talk to Them?.\u003c\/p\u003e  \u003cp\u003eThe Move to Lived Experience.\u003c\/p\u003e  \u003cp\u003eActivism and Knowledge-Making.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003e7 Experience: What’s in a Foundational Category?.\u003c\/p\u003e  Background.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eExamples from the Literature.\u003c\/p\u003e  \u003cp\u003eWhose Experiences Does Research Need?.\u003c\/p\u003e  \u003cp\u003eMental Health Specifically.\u003c\/p\u003e  \u003cp\u003eDiversity.\u003c\/p\u003e  \u003cp\u003eLived Experience: What Is It?.\u003c\/p\u003e  \u003cp\u003eLiminal Identities in Liminal Spaces.\u003c\/p\u003e  \u003cp\u003eIndividual and Collective Experience.\u003c\/p\u003e  \u003cp\u003eConclusion: Experience in Context.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  8 Specific Projects Led by Service Users.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eBackground.\u003c\/p\u003e  \u003cp\u003eBeing a User\/Survivor Researcher.\u003c\/p\u003e  \u003cp\u003eExample 1: Consumer\/Patient-Centred Systematic Reviews.\u003c\/p\u003e  \u003cp\u003eAnalysis from the Present.\u003c\/p\u003e  \u003cp\u003eExample 2: Participatory Research.\u003c\/p\u003e  \u003cp\u003eUser-Generated Outcome Measures.\u003c\/p\u003e  \u003cp\u003eOutcome Measures.\u003c\/p\u003e  \u003cp\u003eVOICE.\u003c\/p\u003e  \u003cp\u003eDelving into the Conversations.\u003c\/p\u003e  Participatory Research and Power.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eEthics.\u003c\/p\u003e  \u003cp\u003eCommunity Validation.\u003c\/p\u003e  \u003cp\u003eModifying the Model.\u003c\/p\u003e  \u003cp\u003eIs There a ‘Community’ of Mental Health Service Users\/Survivors?.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  \u003cp\u003ePart IV Guiding Principles.\u003c\/p\u003e  \u003cp\u003e9 Intersectionality and Mental Life Disturbed.\u003c\/p\u003e  \u003cp\u003eBackground.\u003c\/p\u003e  Approach.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eWomen and Madness.\u003c\/p\u003e  \u003cp\u003ePractice.\u003c\/p\u003e  \u003cp\u003eMad Politics.\u003c\/p\u003e  \u003cp\u003eFeminist Therapy and Structural Violence.\u003c\/p\u003e  \u003cp\u003eRacialisation and Madness in the West.\u003c\/p\u003e  \u003cp\u003eThe Sharp End of Psychiatry.\u003c\/p\u003e  \u003cp\u003eA White Survivor Movement.\u003c\/p\u003e  \u003cp\u003eProblems.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  References.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003e10 Conclusion.\u003c\/p\u003e  \u003cp\u003eTheory.\u003c\/p\u003e  \u003cp\u003eConditions for Silencing Madness.\u003c\/p\u003e  \u003cp\u003eMental Health and Meaning in the West.\u003c\/p\u003e  \u003cp\u003eWar.\u003c\/p\u003e  \u003cp\u003eTrauma.\u003c\/p\u003e  Not All Meaning Is Therapeutic.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003eIf Madness Is Meaningful What Are Its Conditions?.\u003c\/p\u003e  \u003cp\u003eThe Routledge International Handbook of Mad Studies.\u003c\/p\u003e  The Social Model of Disability.\u003cp\u003e\u003c\/p\u003e  \u003cp\u003ePsychosocial Disability.\u003c\/p\u003e  \u003cp\u003eReasonable Accommodations.\u003c\/p\u003e  \u003cp\u003eWhat Is Madness?.\u003c\/p\u003e  \u003cp\u003eActivism and Last Words.\u003c\/p\u003e  \u003cp\u003eJoining up Conditions.\u003c\/p\u003e  \u003cp\u003eImplications for Research.\u003c\/p\u003e  \u003cp\u003eActivism as Knowledge—A Provocation.\u003c\/p\u003e  \u003cp\u003eConclusion.\u003c\/p\u003e  \u003cp\u003eReferences.\u003c\/p\u003e  Index.\u003cp\u003e\u003c\/p\u003e\u003cbr\u003e","brand":"Springer International Publishing AG","offers":[{"title":"Default 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