{"product_id":"living-well-with-a-serious-illness-9781421445984","title":"Living Well with a Serious Illness","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003eA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers.   Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care.   Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions \u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003e\u003cp\u003eForeword by Sunita Puri, MD\u003cbr\u003eIntroduction: David's Story\u003cbr\u003e1. What is Palliative Care?\u003cbr\u003e2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease\u003cbr\u003e3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones\u003cbr\u003e4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand\u003cbr\u003e5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family\u003cbr\u003e6. Putting it All Together: Creating an Action Plan for When the End is Near\u003cbr\u003e7. Spirituality and Well-Being: Care of the Spirit Matters Too\u003cbr\u003e8. Grief: Tapping into Restorative Sources After Goodbye\u003cbr\u003e9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can Do\u003cbr\u003eEpilogue: David's Legacy—The Kanarek Family Foundation\u003cbr\u003eResources\u003cbr\u003eAcknowledgments\u003cbr\u003eAbout the Author\u003cbr\u003eIndex\u003c\/p\u003e","brand":"Johns Hopkins University Press","offers":[{"title":"Default Title","offer_id":49408148570455,"sku":"9781421445984","price":15.68,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0817\/1739\/5799\/files\/9781421445984.jpg?v=1730501768","url":"https:\/\/bookcurl.com\/products\/living-well-with-a-serious-illness-9781421445984","provider":"Book Curl","version":"1.0","type":"link"}