{"product_id":"in-the-shadow-of-illness-9780691050799","title":"In the Shadow of Illness","description":"\u003cb\u003eBook Synopsis\u003c\/b\u003e\u003cbr\u003eSuggests that understanding the impact of the illness lies not in identifying deficiencies, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. This book focuses on the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis.\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTrade Review\u003c\/b\u003e\u003cbr\u003eWinner of the 1997 Charles A. Corr Award in Literature \"In the Shadow of Illness is a beautifully written, well-organized book that is an outstanding contribution to our understanding of the impact of chronic illness on the family and the factors that affect the coping mechanisms over the trajectory of chronic illness. An important source of information and understanding for families who find themselves in the shadow of illness.\"--Kirby Pope, Bulletin of the Menninger Clinic \"Myra Bluebond-Langner gives us a framework of understanding how families--siblings as well as parents--move through their understanding of the condition, and their coping strategies, by redefining 'normal' family life to include routine CF care and reassessing their family priorities. She has done this with great skill and sensitivity.\"--Clinical Child Psychology and Psychiatry \"I strongly recommend this book to anyone involved with families of children with CF and potentially with other chronic life-threatening illnesses. There is no question that it provides new and valid insight concerning parent and sibling adaptation.\"--Omega \"An important contribution to the ethnography of illness experience...This book will be of great value to researchers and clinicians with interests in how families cope with chronic illness, life-threatening conditions, and genetic disorders.\"--Joan Ablon, Medical Anthropology Quarterly\u003cbr\u003e\u003cbr\u003e\u003cb\u003eTable of Contents\u003c\/b\u003e\u003cbr\u003eList of Tables ix  Preface xi  Acknowledgments xv  PART 1. INTRODUCTION 1  Chapter 1. The Impact of Cystic Fibrosis on Well Siblings 3  1. Approaches to the Study of Well Siblings 3  2. An Ethnographic Approach 10  3. A Framework for Analysis 12  PART 11. PORTRAITS IN WAITING: NINE FAMILIES 15  Introduction 17  Chapter 2. The Daleys 19  Chapter 3. The Shermans 26  Chapter 4. The Farringtons 39  Chapter 5. The Campbells 48  Chapter 6. The Reynoldses 59  Chapter 7. The Chases 74  Chapter 8. The Woodwards 90  Chapter 9. The Fosters 100  Chapter 10. The Baileys 122  PART III. CONTAINING THE INTRUSION 133  Chapter 11. Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders 135  1. Issues and Strategies 137  2. Strategies, Normalcy, and Control 186  Chapter 12. Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition 197  1. Well Siblings' Views 197  2. Formation of Well Siblings' Views 212  Chapter 13. Well Siblings' Relationships with Parents and Ill Siblings 215   1. Resources and Communication 216   2. The Well Siblings' Position in the Family 260   Afterword: Meeting the Needs of the Well Sibling 265   1. General Guide lines for Clinical Intervention 266  2. Communication in the Family: The Case for \"Shuttle Diplomacy\" 267  Glossary 273  Works Cited 275  Index 295","brand":"Princeton University Press","offers":[{"title":"Default Title","offer_id":49403703951703,"sku":"9780691050799","price":31.5,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0817\/1739\/5799\/files\/9780691050799.jpg?v=1730484296","url":"https:\/\/bookcurl.com\/products\/in-the-shadow-of-illness-9780691050799","provider":"Book Curl","version":"1.0","type":"link"}